Tilly was part of a gene therapy clinical trial at Sheffield Children's Hospital in 2024 to try to help reduce seizures connected to her condition.
"The first time there's any type of struggle, the immediate thought is, 'well, I thought you were my soulmate. But maybe you're not, because soulmates aren't supposed to deal with things'," he says. "But if relationships are going to go long term, it's never just going to be a downhill run."
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